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Biliary Atresia
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Hope Through Research
Researchers are studying the possible causes of biliary atresia and new ways to diagnose and treat it. One of the largest research initiatives is the Biliary Atresia Research Consortium (BARC), a network of centers funded by the National Institute of Diabetes and Digestive and Kidney Diseases.
The network comprises 10 liver disease and transplant centers and one data-coordinating center. The centers work together to coordinate research and share ideas and resources. The network will enroll infants with biliary atresia in a large study to evaluate the best ways of managing the disease and to carry out clinical trials of new and promising treatments or approaches for diagnosis and monitoring the disease.
Because biliary atresia is a rare disease, only a network of centers can identify enough infants with this disease to carry out studies of new therapies.
Centers will collect blood, tissue, and other samples from infants with biliary atresia so researchers can learn more about biliary atresia and find better treatments. An important goal of Biliary Atresia Research Consortium (BARC) is to help find the causes of biliary atresia and recommend ways for its early detection and proper management.
For More Information About Biliary Atresia
The American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
Phone: 1-800-GO-LIVER (465-4837)
Fax: 212-483-8179
Email: info@liverfoundation.org
Internet: www.liverfoundation.org
Canadian Liver Foundation
2235 Sheppard Avenue East, Suite 1500
Toronto, Ontario M2J 5B5
Canada
Phone: 1-800-563-5483
Fax: 416-491-4952
Email: clf@liver.ca
Internet: www.liver.ca
Children's Liver Association for Support Services
25379 Wayne Mills Place, Suite 143
Valencia CA 91355
Phone: 1-877-679-8256
Fax: 661-263-9099
Email: info@classkids.org
Internet: www.classkids.org
The Children's Organ Transplant Association
2501 West COTA Drive
Bloomington, IN 47403
Phone: 1-800-366-2682
Fax: 812-336-8885
Internet: www.cota.org
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References:
National Digestive Diseases Information Clearinghouse (NDDIC)
July 2006
digestive.niddk.nih.gov
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